Dan Gilbert wears many hats: NBA owner, entrepreneur, Detroit booster and Dad. While building Rocket Companies – the $30 billion mortgage giant – and investing billions in the Motor City’s 21st century development, he was a rare disease parent. Gilbert’s oldest child, Nick, died in 2023 following a lifelong battle with neurofibromatosis, a genetic disease that causes tumors to grow on nerve pathways anywhere in the body. The most common type, NF1, affects approximately 1 in 2,500 births. Half of those patients develop learning and physical challenges.
Nick had a following among basketball fans. He represented the Cleveland Cavaliers at multiple NBA draft lotteries and proved something of a good luck charm for the team and the city. Since his death, the Gilbert family have pledged millions to fund research initiatives in the hopes of finding a cure for NF.
Chapters:
01:14 Introduction
03:06 A Father’s Story
10:35 What’s Not to Like?
14:06 Nick’s Legacy
20:34 Rebuilding
Produced by: Katie Kramer, Brad Quick
Edited by: John Lazration
Camera: Gerard Miller, David Grogan, Tara McCurrie, Shawn McMillan
Audio: Sean Demers
Graphics by: Jason Reginato, Lindsey Jacobson
Additional Materials: Gilbert Family, NFX, Cleveland Cavaliers, NBA, Bedrock Detroit, Getty Images
Thanks to: Saksey’s Detroit, Gilly’s Clubhouse
Read more about the Gilbert Family Foundation’s work here: https://gilbertfamilyfoundation.org/
Follow the high-impact research to develop treatments for neurofibromatosis type 1: https://www.nfxdetroit.org/
If you are a parent or caregiver seeking NF information: https://www.ctf.org/
Join us in advancing awareness and understanding of rare diseases: https://www.cnbc.com/cures/ and subscribe to the weekly CNBC Cures newsletter: https://www.cnbc.com/cnbc-cures-newsletter/
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